Cancer Registries are centers for systematic gathering, storing, analyzing, interpretation, and presentation of data on cancer incidence and survival of cancer patients. The Cancer Registry of Slovenia stores the data on all cancer patients in Slovenia, whereas the Hospital-Based Cancer Registry of the Institute of Oncology keeps only the data on the patients treated at the Institute. In the clinical registries the extended data on cancer patients care for certain cancer types is collected.
The Cancer Registry of Republic of Slovenia (Registry) is one of the oldest population-based cancer registries in Europe. It was founded in 1950 at the Institute of Oncology in Ljubljana as a special service for collecting and processing data on cancer incidence and cancer patients’ survival. Slovenian Cancer Registry is a voting member of the International Association of Cancer Registries – IACR since its foundation in 1966 as well as a full member of the European Network of Cancer Registries - ENCR since 1990.
Notification of cancer has been compulsory in Slovenia since the foundation of the Registry and prescribed by law (Official Gazette of SRS, No 10/50, 29/50, 14/65, 1/80, 45/82 and 42/85; Official Gazette of RS, No 9/92, 65/00, 47/15 and 31/18). The main sources of data are notifications of cancer, gathered from all hospitals and diagnostic centres in Slovenia.
The existence of a population-based cancer registry is justified only by regular processing, publishing and using the data collected. Website on cancer information in Slovenia and other countries SLORA is based on the Registry data – it presents Slovenian cancer burden indicators from 1961 on.
The Registry’s Annual Reports (AR) are our most traditional way of disseminating information:
AR2001, AR2002, AR2003, AR2004, AR2005, AR2006, AR2007, AR2008, AR2009, AR2010, AR2011, AR2012, AR2013, AR2014, AR2015, AR2016, AR2017, AR2018, AR2019.
More detailed analyses with commentaries are appearing in medical literature as articles or monographs:
Survival of cancer patients, diagnosed in 1997-2016 in Slovenia,
Survival of cancer patients, diagnosed in 1991-2005 in Slovenia,
Cancer patients survival in Slovenia 1983-1997,
Cancer patients survival in Slovenia 1963-1990,
Atlas of cancer incidence in Slovenia 1978-1987.
The data collected in the Cancer Registry of Republic of Slovenia are also accessible to Slovenian medical community, investigators or general public by e-mail firstname.lastname@example.org.